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steph01 avatar

pNET. Not sure what to do.

Neuroendocrine Tumors (NETs) | Last Active: 2 days ago | Replies (26)

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Profile picture for kathyfujii @kathyfujii

I also had a small Pnet diagnosed in March of this year, and had a distal pancreatectomy in July to remove it. I highly recommend resection as soon as possible because even though it was small, slow growing in the tail like yours, my Stanford surgeon discovered 2 tiny lesions on my liver that it had metastasized to (from Dotatate scan.)) This was zapped in an RF procedure the week before with microwave ablation. I was also lucky that my spleen was saved, and my surgery was laparoscopic. Hopefully I'll just require surveillance through scans. I'll see an oncologist in November. So, waiting is NOT recommended!

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Replies to "I also had a small Pnet diagnosed in March of this year, and had a distal..."

@kathyfujii

Hi, wow this is very appreciated and I'm wishing you all the best.
I'm wondering if I an ask some questions? How old are you?
Where did you gt the surgery and would you mind sharing the name of the surgeon at Stanford? Was this robotic? I'm not sure if laparoscopic means robotic. Any other info you can provide about your tumor? The grade or stage they found out it was after surgery? Was the surgery painful and how was the recovery? Any pancreatic leakage?

Thank you.