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pNET. Not sure what to do.

Neuroendocrine Tumors (NETs) | Last Active: 2 days ago | Replies (26)

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Profile picture for lindabees @lindabees

Hi
My husband had a distal pancreatectomy with spleen removal 18 years ago. The splenectomy really hasn't resulted in any issues. There are several vaccines that were required that he have following the surgery. He now keeps an eye on his temperature if he gets a fever. Are they planning to do a dotatate pet scan? That will give you the whole picture and allow you to make an informed decision.
If at all possible, try to be treated by a net specialist. Canada's primary specialized multidisciplinary center for neuroendocrine tumors (NETs) is the Susan Leslie Clinic for Neuroendocrine Tumours at Sunnybrook Health Sciences Centre (Odette Cancer Centre) in Toronto, Ontario)
Also, it's great that your looking for guidance. It's also really important that you educate yourself as much as possible about this. Here's a great site for that:https://cnets.ca/

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Replies to "Hi My husband had a distal pancreatectomy with spleen removal 18 years ago. The splenectomy really..."

@lindabees

Hi, and thank you so much for your reply. I hope your husband is doing well now. Since it's been so long, was surgery the best option as it cured him?

Not yet. I'm waiting the MRI in November and then I'm wondering if they'll suggest the Dotatate after that.

Right now I'm seeing a doctor at Princess Margaret. Should I ask them to give me a refer to the Susan Leslie Clinic? I would like to go here as you mentioned it and it looks to be a good place.

Thank you of the cnets website too.