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Profile picture for vic83 @vic83

I am sorry for your situation. I just saw your question. I have bilateral multifocal lung cancer and since Dec 2021 have had 2 VAT wedge resections and two radiation treatments. I experienced pneumonitis after my photon SBRT radiation some 3 years ago. Pneumonitis scars the lungs, so I am now diagnosed with pulmonary fibrosis and am on permanent oxygen for exertion and sleep. I had proton beam radiation in December 2025 and 20 weeks later developed significant chest pain which is now much better. It remains to be seen if it impacted my lung reserve. I understand your choice. Because of the fibrosis and reduced lung reserve, my treatment choices are limited. I am still independent and would not risk losing that. Quality of life is important. And if you are able to exercise and walk everyday, that is a positive fact. Warmest wishes

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Replies to "I am sorry for your situation. I just saw your question. I have bilateral multifocal lung..."

@vic83 Thanks Vic! Sounds like we are on similar paths!
Are you taking any anti-fibrotic meds?
I’m dealing with intermittent dry coughing episodes and shortness of breath when exerting myself (moderate walking). Have you been prescribed anything to help?
Do you see a pulmonologist? Does he/she offer any support other than 02? I am using O2 when walking but don’t need it for sitting or lying.
Thanks for your suggestions/support!