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Chemo and Immunotherapy: Any tips before I start?

Gynecologic Cancers | Last Active: Oct 22 12:08pm | Replies (33)

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I was on the carbo-pac combination, but not with Jemperli. My first infusion nurse was extremely kind, taking the time to explain exactly what would happen with the pre-infusion meds and how I might feel as the juices flowed in. I felt cold and tired, but not sick. At home, I never threw up or had diarrhea, but at first I had little appetite. Smoothies were my go-to. I felt like I was in slow motion or a fog, After a few days, I started to feel more like myself and my appetite gradually returned. I eventually realized that I was turning the corner when I had a craving for potato chips.
The anxiety from the diagnosis, decisions, fears, etc was often overwhelming and I did seek support from a 1;1 mentor, a social worker, and eventually a licensed psychologist. I think many of us come to this forum because of the anxiety.
Keep us posted. We are here for you.

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Replies to "I was on the carbo-pac combination, but not with Jemperli. My first infusion nurse was extremely..."

@ffr This is so helpful to hear. I'm struggling to envision what life will be like through each cycle of treatment. The scariest is reading all the possible side effects. I've never taken medication - an ibuprofen maybe twice a year. So the side effects worry me even though I am youngish, healthy (other than cancer).
Did you use cooling cap, gloves or socks? I'm trying to avoid neuropathy primarily. The cap seems painful (I am so sensitive to cold) & a bit overwhelming to manage.

@ffr Thank you! Smoothies are a great idea!
I'm curious about the overall ups and downs. Were there times during chemo when you felt good enough to go out (walks or time with a friend)? Did you have visitors? Or are you basically shutoff due to risks of infection (flu/Covid)?