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Please share your experience on hydroxychloroquine/Paquinol
Autoimmune Diseases | Last Active: 3 days ago | Replies (62)Comment receiving replies
I’ve been taking hydroxichloroqine for a month after diagnosis of “pseudogout” in my hands. The fingers and joints in my hands have swollen and it’s very difficult to manipulate them. There is joint damage.
I wonder if my initial dx of RA was accurate as I haven’t landed on a med that works for any period of time. I’m trying to get an appointment with Johns Hopkins arthritis center to confirm the dx but there are no openings.
The hydroxychloroquine worked well the first two weeks but seems to be tapering off.
Replies to "I’ve been taking hydroxichloroqine for a month after diagnosis of “pseudogout” in my hands. The fingers..."
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@2brussels I was diagnosed with CPPD, also called pseudogout and pseudo rheumatoid. I started plaquenil 6/5/2026 and haven't had any side effects. It takes 3-6 months to start working. Up to 12 months, I've read. I have chronic CPPD so I don't swell up like you do. X-rays will show the crystals of CPPD, also an ultrasound or aspiration of the swollen joint. I was misdiagnosed for approx. 14 years. You have to find a doctor/rheumatologist that has experience with the crystal arthropathies. Not all do. My third rheumatologist diagnosed me. Good luck and let us know what you find out. Reiterating...the plaquenil takes months to work and you need an eye exam yearly.