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Profile picture for jabrown0407 @jabrown0407

I have had edema n my feet and legs for years as a result of PMR onset. The left leg was first followed a few weeks later by the right leg. I also have had searing pain in my legs for years. Finally when I was on Tyenne the searing pain dissipated. I receive lymphatic massages every other week for the edema to keep it under control.
Please also make an appointment with your PCP for the leg problem since it may or may not be associated with the reason you are going to see a Rheumy. My rheumy is dismissive of specific symptoms and routinely says "every patient is different". She does not focus on individual symptoms. Your leg problem is not something that should be dismissed quickly. I would think they might want to eliminate a possible dangerous cause before lumping it into the PMR bucket.
I wish you success on your journey and remember you know your body best.

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Replies to "I have had edema n my feet and legs for years as a result of PMR..."

@jabrown0407 Thank you. I was able to have a steroid shot yesterday and swelling is down and pain much better. Did you have any side effects with Tyenne? I am so sorry you have been having issues so long. Hope the best is coming your way way.