@mamajite I'm so sorry you were born with that mutation. I live in Montreal, Quebec (Canada) and I wish they screened for lung cancer earlier. I had no idea that lung cancer is the leading cause of cancer death in Canada and the USA and it's affecting younger women more and more!
I hope you can get the surgery, get everything removed and live cancer-free and drug side effect free (hopefully)! I do have an oncologist dermatologist - but he's super unempathetic and says stuff like "well, acneiform and itchy scalp is a small price to pay." I feel like if there were a light at the end of the tunnel, I'd be like - ok, I got this. But for life? That still boggles my mind and I just can't grasp how I'm going to manage this... I'm 48 years old. Nobody understands me - I don't know ANYONE with terminal cancer in real life.