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I'm still in remission after 5 years!

Lung Cancer | Last Active: 1 day ago | Replies (52)

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@mamajite That's a tough spot to be in but I'm glad you've found a surgeon in Boston who's willing to help.
I agree that most lay people think of the 4-6 cycles of chemo model for cancer treatment. Sadly, I've even encountered that same attitude in other cancer support groups, which is why I'm so grateful to have found this community.
I'm glad you have a doctor able to help mitigate the side effects of the osimertinib. The triage nurse at my cancer center has recommended over the counter medications like Cortisone 10 to help mitigate itchy skin--one side effect of the Romvimza, which also gives me the puffy eyes. To be honest, I haven't pursued trying to reduce the swelling (it isn't uncomfortable--just ugly) because I have so many other side effects to cope with. Also, I live about 100 miles from the nearest moderately large city (Santa Fe). All but one of my doctors are there, making every medical appointment an exhausting trip that wears me out for several days.
You and I are alike regarding the to do list. I try--but don't always succeed--in completing my chores.

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Replies to "@mamajite That's a tough spot to be in but I'm glad you've found a surgeon in..."

@lycisca thank you. 🫶🏻 my mom used to come to Seattle for her cancer care and it was exhausting for her to have to make that trip. but she lived in rural Oregon and there weren't the specialists she needed near her. just going to clinic can take a lot out of you and when you have to also add travel, it's not easy. I hope you are able to build in rest days when you return from seeing your care team. ❤️