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Mucus over the years

MAC & Bronchiectasis | Last Active: Oct 5 1:49pm | Replies (25)

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@kathyjjb Have wondered how you are doing with working up that sweat while on the "treadmill" to get the mucus up.??

I have some good news.
The sputum sample sent into Tyler had 8 colonies but would not grow to be able to show susceptability. It appears it has been knocked back per my understanding.
I wondered why I have felt different this last month. I just feel stronger.
So for now, after four years of knowing I have Bronchiectais with an Intercellular infection and no antibiotics, I appear to have knocked it down. Wow, hard to believe and hope it is truly correct, the test.
I still can't seem to get the weight on.
The mucus amount amount with clearing does stay the same.
How is it going for you?
Barbara

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Replies to "@kathyjjb Have wondered how you are doing with working up that sweat while on the "treadmill"..."

@blm1007blm1007 Hi Barbara, I'm still working up a sweat on the treadmill. Bringing up a little mucus (pea sized) but interestingly, 4-5 hours later. My guess is it's coming from lower lungs and/or smaller airways. I'm doing good, thank you!

Congratulations!!!! 8 is super LOW. Did they tell you if it just grew in the broth? My last 2 culture counts were 8. The first of the 2, was 8 on the plate and broth and the last one was 8 in the broth (which means their viability was low) and none on the plate. Either way, both were super low that my ID doctor questioned whether it was environmental contamination. I'm over due to send in my quarterly, so really need to work on that.

I have had periods of no appetite and I just ate anyways-what I would normally eat. Often, I would get my appetite back after I started eating. Low BMI is a big risk factor for NTMs and requiring antibiotic RX.

I was so happy to read your news!!

Kathy

@blm1007blm1007
Mucus for me varies from day to day. I am tapering off my PPI for silent reflux at the moment it is tough going. The PPI was making me feel sick and I was unable to eat. I lost a stone in weight in 12 weeks. My my BMI is now in the very low range. Scared that my 'watchful waiting' might change to treatment again. I too have BE. Fatigue can be horrific when you do not have the reserve. My sputum colour has been a darker green over the past few weeks. Having my flu vaccine on Saturday fingers crossed I am well enough to have it. Nobody really understands how NTM and BE can impact a person's life. Reading all the info from everyone here is reassuring. Good luck to everyone. Keep posting. One quick question has anyone ever had a fowl smell in their nose with NTM or BE ?