Hi @warren51 From what other CAR-T members have mentioned, it’s not uncommon to have some muscle or joint pain for a few months after recovery.
Here is a link to one of the discussions:
~ CAR-T cell Therapy: Joint and muscle pain
https://connect.mayoclinic.org/discussion/joint-and-muscle-pain-1/
Is your pain more muscular or do you feel it in the bone or hip joint? It’s curious that it goes away during the day. Could there be a link in your sleeping position in regards to a possible compression on a disc or nerve in your spine? I’m just tossing that out to you as I had a bone marrow transplant and experienced leg and shoulder pain early on. Massages with licensed massage therapist has really made an enormous difference with myofacial release around my spine…the stiffness and pain has gone away.

I’m sure the weight loss is a bit concerning for you though, especially after regaining much needed pounds after chemo/radiation. Has your appetite changed?
From my own experience, I know it’s important to keep up with a healthy protein intake. But it’s also ok during recovery to pack on calories to keep the weight going in the right direction. I added smoothies made with ice cream. (Worry about cholesterol levels later…that was my advice from my doctor and dietitian) Have you mentioned the weight loss to your doctor?

And the last question for now, I promise…☺️ If you don’t mind sharing, what was the underlying diagnosis that led you to receiving the CAR-T procedure?