@kjoed53 When I was first diagnosed with PMR, my rheumatologist provided guidance, but he also trusted me to decide if my body needed a temporary boost or even to slow down a taper. I of course kept him apprised of what I had done. By the way, I was following his directive, not my decision, when I developed the prednisone withdrawal that led to my SAI. He actually apologized to me for having not picked up on earlier signs when I saw him for my annual visit. I seriously considered changing doctors, not just because of that but also because my PCP retired, and I will be receiving care in a different medical system — it seemed easier to consolidate care in one. But both insititutions here are teaching hospitals and medical centers, and I was offered only a fellow, not a specialist whose “about me” statement mentioned experience with complex disorders. No one is perfect, and I did appreciate his admission, so I am staying with him, But I am also advocating for myself because I have seen too many instances in my own care and that of my husband and mother where “doctor knows best” resulted in longlasting sequalae and in the case of my husband, hastened death.