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Anyone had more than 4 rounds of PRRT? I will have rounds 5 & 6
Neuroendocrine Tumors (NETs) | Last Active: Oct 5 8:22am | Replies (9)Comment receiving replies
Has anyone had 4 rounds of PRRT and after it stopped working did 2 more rounds. Any feedback back regarding
- Results?
- Side effects?
- Complications?
I will start round 5 in November and 6 in JanuaryI did really well with 1-4 but it only kept me stable for about 18 months
Any information will be greatly appreciated
Thank you
All my best
Replies to "Has anyone had 4 rounds of PRRT and after it stopped working did 2 more rounds...."
@sophiarose , I just did a 4 round retreatment of prrt starting in aug 2026 finishing in Feb 2026. It did shrink stuff a little bit but kept everything in check until Sept 2026. I'm not sure if 4 retreatment was better than 2. I was hoping for a longer effect but maybe you'll be different. What I do know is that the pnet/liver Mets became more angry on my latest scan. No side effects from the retreatment. I'll find out in a another year regarding the aml risk of prrt.
TJF
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@sophiarose, I'm just catching up with your timeline. If I read correctly, you had the typical 4 rounds of PRRT and tolerated treatment well. PRRT helped to keep you stable for 18 months. But now you are no longer stable and your oncologist has suggested 2 more treatments with PRRT.
Do I have that right?