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@jnj59 That has to be a precarious place to be! I have a fusion from T8 to L2 ( in 2020&2021) and now am having cervical issues/degeneration. How high it goes he is unsure, so he ordered a SPECT-scan. He said it would get better coverage head to tail than a CT or MRI (being so much refraction from the titanium railroad !) Im having issues now with autonomic issues which apparently are at your same area. Just wanted to ask if you've found the Reddit groups? Ive been there recently & MANY folks on the spinal fusion/long spinal fusion groups who have been helpful as well. The more resouces the better! If I may ask, what symptoms have/are you struggling with at that level? I sincerely hope you find great support & answers to help you with these difficult issues!
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@317wawr I’m fused from S2-T9 and then had a cervical fission from C5-C7 last September. I was having a lot of pain between my shoulder blade’s and down my arm’s. The surgery did help, but as time goes by it’s coming back with a vengeance! I keep thinking with every surgery that I will get a lot of relief from the pain, but this was my 16th spine surgery and I’m worse off than I was when I had my first one 26 years ago. I hope and pray that you find the relief that you’re looking for! Because I’m about ready to end my journey permanently!! I can’t take the pain anymore!