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Bronchiectasis treatment - best places to go?
MAC & Bronchiectasis | Last Active: Sep 28 6:41am | Replies (36)Comment receiving replies
@agcosby Typed a reply last night and accidently clicked out and lost all I typed so hear goes again.
I have seen the OU pulmonologist only 2 times in the last year. Dr. Daouk
I have seen the OU Infectious Disease doctor Dr. Daouk had me see one time. Dr. Alkozah
Dr. Daouk also has and is willing to refer me to others when he listens to what I say.
Dr. Daouk and Dr. Alkozah was very understanding of my wanting to stay on "watchful waiting" considering all we know about my conditon.
So, really I am new with both. However, I am pleased so far with how they handle all.
OU is striving to become a Center of Excellence.
Both and all the doctors are in the Medical Physicians building 800 block of NE 10th in OKC.
I was glad to hear you went to NJH also. I was there in 2023. How long have you been dealing with all related to Bronchiectasis. I was diagnosed in 2022.
Who is your local pulmonologist.?
I also made a suggestion to all I see at OU to consider a 'Meet and Greet' for the Bronchiectasis patients. Hope they are able to arrange that, they seemed to be open to the idea.
Barbara
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@blm1007blm1007 I was diagnosed in September 2023. Started treatment in Oklahoma and quickly realized that is a lack of understanding in our community. That led me to do my own research and find NJH. Took me 4 months to get an appointment. Started treatment there in September 2024. I go quarterly to Denver. My main concern is local in-depth knowledge for treatment plans, as I may have to start antibiotics very soon. It will be my second time for this. While NJH will direct my care, we must have a strong team here also. Especially while on active treatment.