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← Return to CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)
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CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)
Autoimmune Diseases | Last Active: 4 hours ago | Replies (379)Comment receiving replies
@becsbuddy
@itsmeagain
Yes, I’ve been getting Iv treatments for 4 years twice a month. Helped me in learning to walk again but dr and I agreed I’ve plateaued about 8 months ago and now I’m not walking as well. Why? Who knows? I’m disappointed. Now we’ve switched to every 5 weeks instead of 4 to see how that works.
I get discouraged because I hear so many people who are now walking and have pretty much regained their former life and I’m nowhere near that . I’m still in a wheelchair.
I have no after effects from the treatment but I feel I’m going nowhere.
Sorry, that’s probably not what you wanted to hear.
Replies to "@becsbuddy @itsmeagain Yes, I’ve been getting Iv treatments for 4 years twice a month. Helped me..."
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@itsmeagain Please try not to compare yourself to others! It’s hard, but necessary. I don’t let myself do it either. I’m the only one on my journey and have to only help, and be myself. Yes, you’ve had a setback, but as long as You keep trying, you’ll gain confidence in yourself and get better and better. Trust yourself!
What is one thing that you’ve been successful at this past week!