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Bronchiectasis treatment - best places to go?
MAC & Bronchiectasis | Last Active: Sep 28 6:41am | Replies (36)Comment receiving replies
@teedlum @blm1007blm1007
Hi, I am also in the OKC area and a patient at NJH. I would love any insight on a pulmonologist in our area that is willing and able to dive into our journeys with bronchiectasis, MAC and other NTM issues and bacterias. I have seen good doctors here, but would love to find a pulmonologist who truly understands our issues.
Replies to "@teedlum @blm1007blm1007 Hi, I am also in the OKC area and a patient at NJH. I..."
@agcosby Typed a reply last night and accidently clicked out and lost all I typed so hear goes again.
I have seen the OU pulmonologist only 2 times in the last year. Dr. Daouk
I have seen the OU Infectious Disease doctor Dr. Daouk had me see one time. Dr. Alkozah
Dr. Daouk also has and is willing to refer me to others when he listens to what I say.
Dr. Daouk and Dr. Alkozah was very understanding of my wanting to stay on "watchful waiting" considering all we know about my conditon.
So, really I am new with both. However, I am pleased so far with how they handle all.
OU is striving to become a Center of Excellence.
Both and all the doctors are in the Medical Physicians building 800 block of NE 10th in OKC.
I was glad to hear you went to NJH also. I was there in 2023. How long have you been dealing with all related to Bronchiectasis. I was diagnosed in 2022.
Who is your local pulmonologist.?
I also made a suggestion to all I see at OU to consider a 'Meet and Greet' for the Bronchiectasis patients. Hope they are able to arrange that, they seemed to be open to the idea.
Barbara
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@agcosby
Hi AG,
I’m sorry to say that I have not. The two I have been to and their aprn’s are too busy.
In fact the first pulmonologist showed me my scans and said I had Bronchiectasis and asthma.
The next Pulmonologist agreed. Kind of.
The navigational bronchoscopy provider the biopsy from there stated that I had very little bronchiectasis.
Although diagnosed with a small tumor, I don’t know which one of the 3 to believe.
Wishing the best. Keep in touch if you would like,