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I'm still in remission after 5 years!

Lung Cancer | Last Active: Oct 3 2:26pm | Replies (56)

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@nadine78
And I'm slow responding to your post. Apologies--again I'm up to CT scans and a slew of medical stuff. I'm sorry to hear about your diagnosis. I will definitely be on Entrectinib until it stops working or there's something better. Long-term chemo is a lot different from a few months of infusions or radiation because the chemo effects are there as long as we're on the chemo. Probably the hardest thing for me is the "new normal." I wish you good luck with your treatment.

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Replies to "@nadine78 And I'm slow responding to your post. Apologies--again I'm up to CT scans and a..."

@lycisca it's such an important point you made about long term chemo. while targeted therapies have many upsides, the fact that the side effects are unending is a different challenge. I would like to see more studies on how the side effects change with time. I can only speak for my own experience with osimertinib, but year 1 was easier than year 2, which was easier than year 3.