← Return to Day 4 of prednisone and happy! Stay at 15 or go up to 20?

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@jeff97 Jeff,I looked over the copies of my lab report’s going back to Dec 2022 and I don’t have a copy of the results of an IL-6 being done.I was diagnosed in Nov 2022 with Polymyalgia Rheumatica .The CRP was63 and I was started on Prednisone and referred to a Rheumatologist.I started Actemra infusions in February 2023 and tapered off the Prdnisone.I don’t think I had any issues in 2024 or 2025.This episode started in April of this year,definitely GCA and I was started on Prednisone, Now reduced to15 MGMs a day,plus six infusions of Actemra.I am still symptomatic but somewhat improved.Had to increase the Prednisone today to 30 MGMs because of increased sensitivity right and left temporal areas .Advised to return to 15 MGMS tomorrow.I will see how the symptoms are tomorrow.I am most anxious to get off the Prednisone.I am a textbook picture of GCA and scheduled for my seventh infusion of Actemra in twelve days.I will ask if there is another medication that can be added so the Prednisone can soon be discontinued.Then perhaps the combination of a oral anti inflammatory and the Actemra will be effective.The temporal arteries were definitely sensitive yesterday so I will stay on the Prednisone as advised if needed.
I am so thankful for your advice and guidance.Cathie

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Replies to "@jeff97 Jeff,I looked over the copies of my lab report’s going back to Dec 2022 and..."

@cathie1 I haven't had an IL-6 test either. Google says that it is usually only tested in research situations.

A CRP of 63 sounds high to me, but Google says it is in the middle of the range for people with active GCA. Mine was only 9 when I was diagnosed, but my ESR was 58.

I hope you find a treatment plan that controls the GCA and allows you to taper off of prednisone, or at least lets you get to a low dose. I felt much better at 20 mg and below as compared to the higher doses in the range of 40 - 60, but being off of it completely is the best.