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Anyone have Sjögren's with seronegative labs?

Autoimmune Diseases | Last Active: Oct 4 11:01am | Replies (68)

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CPAP machine( I am on BiPaP.) with humidification, Nighttime eye gel or ointment .These last much longer than drops, but can make vision blurry, so use only when going to bed. Anti-inflammatory medication 30 minutes before bedtime( if approved by provider), with small snack, hydrate (drink lots of water throughout day), stop in late afternoon so you are not up urinating all night. Mouth moisturizing rinse(Biotin, generic works just as well) right before you go to sleep, or xylitol moisturizing lozenges that go on your gums for all night relief. Warm or cool gloves for hands( whichever feels better for you), and the same for socks.(you can get these online) Keep room at a neutral temperature; not too hot or cold. Don't give up. Unfortunately after middle age I feel like we sometimes become invisible, and less important to listen to to many providers, Keep advocating for yourself no matter WHAT your age. Am improved quality of life for 1 year or 20 years is worth it! Feel better!

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Replies to "CPAP machine( I am on BiPaP.) with humidification, Nighttime eye gel or ointment .These last much..."

@lablife10
So this is interesting
My Urticaria angioedema has kicked in and it’s terrible itchy burning arms hands the only thing that helps is Prednisone high doses. Using the Prednisone my eyes seem better my dry mouth at night not quite as bad. I did not realize how poorly I felt what a difference. Having Sjogrens
Sleep apnea diabetic is a challenge for sure. I started Ozempic and this has brought my BS numbers down which is great ! But everyone just remember when using Prednisone you have to taper off not cold turkey not good for the system.
I honestly think that the Covid vaccine was responsible for this autoimmune disease
Anyone else??

@lablife10 thanks for the encouragement ! Yes at times I feel invisible but we have to keep trying