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Unexplained leg buckling, balance problems, cognitive changes
Brain & Nervous System | Last Active: Sep 28 10:03pm | Replies (19)Comment receiving replies
I'm 72 and after 11 years of seeing various specialists, I finally got a positive diagnosis of MSA Type C from a neurologist at UCSF Movement Center. The final clue were biopsies and the Syn-One test from CMD Life Sciences in Scottsdale, AZ. Maybe these tests might be of help to you. Good Luck.
Replies to "I'm 72 and after 11 years of seeing various specialists, I finally got a positive diagnosis..."
@scottmoon
Thank you for sharing your experience. Eleven years is such a long time to search for answers, and I’m glad you finally got a diagnosis. I appreciate you mentioning the biopsies and Syn-One test. I’ll ask my husband’s neurologist whether they would be helpful in his case. Wishing you all the best.
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maddocksm @maddocksm, @scottmoon
https://www.ataxia.org/msa-c/
Notice- (scroll down)
Research Pipeline - Therapies in Development for MSA
MSA-C Symptoms
Also, check out the "Resources" and "Get involved" at top of page
https://www.ataxia.org/wp-content/uploads/2019/04/Medications-for-Ataxia.pdf
https://www.ataxia.org/help-develop-new-treatments/