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Support Groups for Unsuccessful Knee Replacements
Joint Replacements | Last Active: Oct 5 8:36am | Replies (20)Comment receiving replies
Hello,
14 mo post op tkr. My journey has been long, and painful, not only physical but psychologically, spiritually and emotionlly. Animals recovering from surgery are treated better than I was. I knew very early post op my pain was mechanical in nature. I faced a level of medical gaslighting that was so bad, it caused severe, depression, anxiety, anger and ptsd. I face berated by two physical therapist and the surgeon; I was avoided and abandoned by my pcp, ridiculed and pressured by PA’s, one even caused physical pain to the point of causing me and my adult daughter to shed tears. One orthopedic said, “some people just feel their bodies more” when I came to him for help concerning the mechanical pain I was having. There is so much more to my painful ordeal. Long story short, and 13 months later a revision specialist finally told me why I was experiencing severe pain, the original surgeon, “overstuffed the lateral condyle, he further stated a revision would be too “risky” and I would be a “case study.” The surgeon also forced my constitutional VARUS into a neutral mechanical alignment without discussing it with me in pre-op consultation. He deformed me. I suffer with chronic sever pain especially so with weightbearing activities. I want justice. I was forced to do a ton of research while trying to recover from a barbaric surgery, to understand what was happening to me. All the while they knew, is what one therapist said to me during an evaluation.
I also discovered the original surgeon used an off the shelf components that didn’t fit my anatomy, therefore he chose a component that was too big - overstuffing my lateral condyle.
Replies to "Hello, 14 mo post op tkr. My journey has been long, and painful, not only physical..."
@yavet50 I am so sorry you are going thru this. My husband had TKR November 2024 and has been living with pain since. He went back to his original surgeon on two occasions and was assured nothing was wrong. I finally located a surgeon that specializes in revisions. He has surgery scheduled for December. I had to keep charting this doctor to get additional tests. One of the issues, as u pointed out, one doctor (especially in the same facility) doesn’t want to dispute his co-worker. Hopefully the December surgery will bring my husband relief. You have to be your own advocate in today’s environment. Good luck
@yavet50
I can't believe you just wrote this about overstuffing the joint. I just discovered this two days ago by giving my TKR symptoms to AI and it deducted that this may very well be my issue. I have been seen by four orthos and NONE of them mentioned this condition. It also brought up using robotics to diagnose using 3D CT scan and also to help with the revision. So I am now in the process of connecting with doctors and centers that have this available. I dont know why my response did not show up on the main thread about "crooked leg (foot) but it did when it said reply. I would very much like to stay in touch and see how you progress in this journey.
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@yavet50
This thread must have some prior, separate discussions.
But your's "@yavet50" is a stand out horror story.
I can hardly believe your "revision specialist" found you in-operable.
I, however, have a SUPER orthopedic surgeon. Please message me if you're willing to travel (or forward your med records) as we are in the Detroit area. I'm sure he would give you a fair, unbiased, and highly experienced review.
Again, if you want please feel free to private message me for his contact info.