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Welcome @subhi, I am sorry to hear about your daughter! Although we cannot help diagnosis, we are here to support you both. It sounds like she has had a big GI work up, I am curious with her joint pain and fever if she has seen a rheumatologist yet? Have you had a second or third opinion on her symptoms? Has she been able to maintain weight? You are being an amazing advocate for your daughter, keep asking questions and know we are here to listen. For nausea what I use is ginger-ail, or ginger candies. It is the only thing that helps control my nausea.
Replies to "Welcome @subhi, I am sorry to hear about your daughter! Although we cannot help diagnosis, we..."
You and your daughter have indeed seen every specialist under the sun! Could you tell me what FMF is? I am not familiar with that abbreviation. Are all the doctors consulting with one another? May I ask where you are from, we get messages from patients all over the world and it gives me a better idea what health care system you are using. I am thinking of you and your daughter. Stay strong, easier said than done!
Is this what the doctors are thinking she has FMF? http://www.mayoclinic.org/diseases-conditions/familial-mediterranean-fever/basics/definition/con-20025734 If so I would belive a genetic doctor visit maybe a good idea.
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Thanks @kariulrich ,
my daughter was seen by:
Family medicine specialist
GI specialist
Paed GI specialist
rheumatologist
Urologist
nephrologist
General surgeon
but no one knows what is the right diagnosis
the Paediatrician GI specialist insisted on FMF and she should take Colchicine 1 mg*2
I need your help to advise me who is the specialist I should ask.
the only one that I didn't ask him was Neurologist .