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What can cause ANA titre of 1:2560?
Autoimmune Diseases | Last Active: Jan 12, 2023 | Replies (111)Comment receiving replies
It is totally possible to have RA and Sjögrens even through blood work does no show it. You can be zero positive. So many things you described reming me of Sjögrens. Sjögrens has inflamed joints, sores in mouth, eye issues including dryness, infections, and serious issues. Sjögrens causes issues with muscles and tendons along with bursitis. If they said no to Sjögrens did they do a lip biopsy? They should have. I know of an amazing Sjögrens group with informative folks and constant post. If you want it just let me know. Do not let them off the hook. I think they are trying but some flags were raised. Such as them not knowing you can be zero positive and not doing a lip biopsy. Hang in there and keep advocating for yourself.
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@bluebird6156 The only test for sjorgens I have had is two different blood panels, both negative. They tried to do that thing where they stick the paper in your eye but my eye burned too badly - I don't remember what the doctor exactly said but she said the test wouldn't be usable and took it out. I will definitely ask if there are other tests we can do for RA or Sjogrens like the lip biopsy - thank you so much! One of my worries is just that my doctors are struggling to find anything that could explain such varied involvement in my brain, liver, joints, etc.
@jenniferhunter Thank you for the book! I will check it out - I like reading!
@lioness Thank you for your kind thoughts! It has been very hard but I am determined to figure it out - I just get a head start 🙂