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Lightheadedness and Off Balance Feeling

Just Want to Talk | Last Active: Oct 4 5:22pm | Replies (15)

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I am Looking into Persistent Postural- Perceptual Dizziness (PPPD)
It sounds like what I have been experiencing. Off balance, unexpected dizziness etc
I have had many tests, including two MRI on my brain for the dizziness with normal results. Blood tests, checking on my bp meds etc.
I heard of this condition on a zoom. As it was explained not many doctors, including ENT doctors know about it or have ever heard about this !
Searching on YouTube videos for explanation.

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Replies to "I am Looking into Persistent Postural- Perceptual Dizziness (PPPD) It sounds like what I have been..."

@blips, here's more information from Mayo Clinic:
- Resolving persistent postural-perceptual dizziness (PPPD) https://www.mayoclinic.org/medical-professionals/otolaryngology/news/resolving-persistent-postural-perceptual-dizziness-pppd/mac-20596513

EXCERPT:
"Persistent postural-perceptual dizziness (PPPD) has only recently been recognized as a unique vestibular condition. The chronic condition causes nonspinning dizziness and unsteadiness triggered by active or passive movement, standing, and visually complex environments. It's often associated with migraine and mental health issues.

"Common misconceptions are that PPPD is purely psychological and that there's no cure — neither of which is true," says Colton T. Clayton, Au.D., Ph.D., an audiologist specializing in vestibular disorders at Mayo Clinic in Jacksonville, Florida. "As a result, many people will see five or six specialists before they land on a final diagnosis of PPPD and an effective treatment pathway."

Mayo Clinic takes a unique approach to diagnosing PPPD that involves a coordinated team and comprehensive testing. The vestibular team has developed a treatment protocol that significantly reduces symptoms in nearly all people with PPPD. "