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Autoimmune? Or is it all in my head?
Autoimmune Diseases | Last Active: Nov 29, 2017 | Replies (18)Comment receiving replies
would appreciate a reply from anyone. have been diagnosed with rheumatoid and psoriatic arthritis. (autoimmune) seems all that can be done is weekly injections of methotrexate injections. tylenol does absolutely nothing. will refuse any controlled substances. WHEN either my feet, knees, hands, elbows, etc. swell,red hot and painful for at least 3 or more months at a time, hand braces, leg boots, etc. are used and then nothing else is done. will just suffer untill it slowly goes away. AFTER A WHILE I FEEL THE PAIN IN, YES IN THE BONES GOING UP THE BONE (like in the marrow) FOR 6 OR MORE INCHES. this has been going on for many, many years. have had an anemia for as many years. the anemia has gotten very bad cannot be myself physically as before. the hematologist does not treat me for this except 3 years age gave me a ferritin infusion. been slowly going downhill. am i being treated properly?
Replies to "would appreciate a reply from anyone. have been diagnosed with rheumatoid and psoriatic arthritis. (autoimmune) seems..."
Meloxicam helps me a lot... Its just a strong anti inflammatory
@oldkarl, yes you have hit the nail on the head. amyloidosis sounds like what i may have. have looked up the symptoms even up to the glaucoma, seems i fit the description. now, what specialist doctor does one see to ascertain if this is what i may have? appreciate any kind of help. thank you, peach414144
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@peach414144 (Peachy?) I like that name. Anyway, to answer your question, no! My diagnosis for years has included rheumatoid and psoriatic arthritis. (autoimmune), According to Morey Gertz and Angelica Dispenzieri at Mayo-Minnesota, these two are some of the most important signs of Amyloidosis of various types. And this business of appearing and then disappearing over a few months is just added signs. Amy is a progressive disorder. It starts with one or two cells, then splits every couple hours, then washes away or deposits the misfolded protein pieces/trash in serum, plasma, urine, or various types of tissues. It creates the RA and PA, and by the time you are about 40-60 years old there is enough there to cause real trouble. You need to talk to one of the better centers, Mayo-MN, Sloan-Kettering, Mass General, Fred Hutchinson, Stanford, City of Hope, for instance. They will do the sFLC and 24 hr urine assays, and tell you if your kidneys are spilling protein out into your liquids and tissues, particularly your sensori-motor nerves. You can get a sample of my situation at https://bit.Ly/1w7j4j8. Or go to Amyloidosis.org, the Amy Foundation site. It is quite rare, and some types are always fatal if not treated properly.
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