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Giant Cell Arteritis

Polymyalgia Rheumatica (PMR) | Last Active: Sep 25 1:51pm | Replies (11)

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Profile picture for ropnrose @ropnrose

@ga29 When I was diagnosed with PMR and suspected to have GCA, my rheumatologist put me on 60 mg. of Prednisone daily. I hadn't had a temporal biopsy yet, but out of an abundance of caution he prescribed it. I had all the classic symptoms of GCA. The potential for blindness was enough for me to accept the dosage. I was on 60 mg. for 6 weeks and then began my taper. After a year and a half I tapered off of Prednisone. The last 10 months of my taper were assisted by Actemra infusions. I've been taking the infusions for 19 months now. I wish you the best.

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Replies to "@ga29 When I was diagnosed with PMR and suspected to have GCA, my rheumatologist put me..."

@ropnrose thank you for your response! I’ve read about others whose doctor did the same. My doctor has disappointed me with his lack of care.
I’ve read up yesterday, on specific side effects of prednisolone. Some of which can explain the symptoms I’m having, vision problems, headaches, among many others. So I’m not as worried as I was? I’m not having blinding headaches, just achy eyes, some dryness and blurry vision when trying to read.
I’ve called another rheumatologist in another city nearby, I’m going to try for a consultation with her. We don’t have any in my city.