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What tests show that you have NETs?
Neuroendocrine Tumors (NETs) | Last Active: Sep 23 5:30pm | Replies (10)Comment receiving replies
I have had both, plus liver biopsy. Definitely in liver. Had recent Pet scan which should show where else. The waiting and not knowing is the worse for me now.
Replies to "I have had both, plus liver biopsy. Definitely in liver. Had recent Pet scan which should..."
Hello @sandy080954, and welcome to the NETs support group on Mayo Connect. I'm glad you found this forum where you can meet others who have also experienced this diagnosis, with all its ups and downs. I see that you have already met @dbamos1945, who has extensive experience with NETs.
Is this a new diagnosis for you? What symptoms led to the discovery of NETs?
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@sandy080954: You have lots of company trying not to worry regarding scan results of our NET tumors and how this will change future! Scanxiety is the term formulated for this painful time.
My hope is that you will get word today that all is stable… I hope it helps that we are all thinking positive future for you! We care.