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@jabrown0407 Just saw doc - he's keeping me at 25 for now split at 15 morning and 10 at dinnertime. I'm able to sleep and morning pain is at 4-5 instead of 6-7. Adding Kevzara in a week or so. Hope it will help.

I like your idea of working on tapering off the evening dose first once I'm able to start tapering - makes sense. Thanks for that.

Definitely have some inconvenient pred side effects. Held first family gathering at my place 2 days ago - even happy conversation or any slight excitement makes me blast into a heart slamming, sweating adrenal rush like some big thing happened. Good grief. Literally have to stay completely calm on this stuff. And lots of deep breaths. I've canceled social gatherings going forward till things settle down.

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Replies to "@jabrown0407 Just saw doc - he's keeping me at 25 for now split at 15 morning..."

@nlcarl Congrats on your plan. Sounds workable. Just know that Kevzara takes like 6-10 weeks before you can begin to taper the prednisone.
Also, the delay in starting the Kevzara will probably be that your drug coverage will require a Prior Authorization. This means that before the insurance covers it, they will require information from your doctor supporting the need. It is not uncommon for the first request to be denied, then the doctor can appeal, provide additional information. If it is denied a second time, only you can request an appeal. Problem is no one tells you about this. It is, in my opinion a stall tactic by your insurance company to avoid covering the drug.
You can appeal but you doctor's office jumps in and provides additional information. Stay in contact with your doctor's office and your drug plan to ask the status to help move it along. I have never been denied after my final appeal, but I could execute this process in my sleep as far as experience. I really do think that the insurance companies make you do it to see if you are serious about the drug.
As for social gatherings, I can best manage one or two people at a time. Put me with 6 people or more and I have to really watch myself to keep a lid on it. I can become combative if not careful. I mean like if you say the sky is blue and I say it looks grey to me, I can go to the mat over the color of the sky. Like, who really cares? This is a known and common side effect of prednisone.
Keep us updated and safe travels on your journey.