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Diagnosed with Giant Cell Tumor / Tenosynovial giant cell tumor?
Sarcoma | Last Active: Sep 25 3:17pm | Replies (8)Comment receiving replies
For anyone who is not familiar, here is more information about tenosynovial giant cell tumors
https://www.mayoclinic.org/diseases-conditions/tenosynovial-giant-cell-tumor/symptoms-causes/syc-20605004
Welcome @gctgirl. I'm tagging @fancynance and @eyrar who have experience with tenosynovial giant cell tumors and may have more to share.
I second @yancy's comment - you are in good hands at Mayo Clinic. Will you be having surgery at Mayo Clinic in Rochester MN?
Replies to "For anyone who is not familiar, here is more information about tenosynovial giant cell tumors https://www.mayoclinic.org/diseases-conditions/tenosynovial-giant-cell-tumor/symptoms-causes/syc-20605004..."
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@colleenyoung Thanks for tagging me! Mine was malignant so my experience may have been different, but I had radiation and then a surgery to remove the tumor in May 2023. I haven’t had any recurrence/metastasis since! I’m not sure if this platform has direct messages, but if it does, feel free to reach out!