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Diet for kidney disease and type 2 diabetes
Chronic Kidney Disease (CKD) | Last Active: 4 days ago | Replies (60)Comment receiving replies
@cheyne You sound like a hero to me! I'm rather new here, and have some questions if you don't mind. If you don't feel like answering, that's okay too. I wonder how you "pushed your eGFR way up." Mine just dropped from 74 in the hospital because I was infused for 10 days with liquid, to 40 within three weeks, Then it went to 49 after an hour of hydration with saline...as an experiment. What do you mean when you say "you are mindful of their needs?" When you write that "you do as you want within reason," are you talking about what you eat? How do you "come to terms with being a walking time bomb?" I'm a nervous wreck, and I'm just starting this journey. If you evaluate everything, what have you done that has been most effective, and what would you do differently? If you answer anything, thank you in advance.
Replies to "@cheyne You sound like a hero to me! I'm rather new here, and have some questions..."
@hatetocook I’m in the same boat and new to kidney 3a after 18 yrs of controlled diabetes. I was very surprised but dr said it might not be from diabetes. I’m nervous as my husband going thru cancer and living with family. I’m thin and don’t want to lose weight. I feel energetic and hardly tired. I guess veggies are my new snacks and fruit.
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@hatetocook
I don't eat or consume anything that could have a detremental affect on my kidneys or diabetes. I stay away from man made rubbish off the shelves and opt for fresh and home grown. No more sugar substitutes as they are worse for you than the sugar they replace. I tried to stick with my diet 99% of the time. A little transgression can be tolerated but straight back onto the diet.
One big problem I hear over and over again. Those new to all this are usually give a stern warning of doom and gloom. It is not and can be easy to move forward just doing the basics. Eventually you realise it is kidney disease not kidney death. Looking after your health and don't ignore the warning is the minimum you should do. I have found my kidneys are tolerant of a lot of things like transgressions with food and the odd medication that can knock the GFR.
The most effective thing I'm doing at present is no joke and actually deadly serious so don't follow my example for your own sake.
I have end stage digestive autonomic polyneuropathy which has paralysed the muscles in the digestive system so food cannot be processed efficiently taking around 48 hours to be partially processed. My glucose and BP are directly affected by the amount of food or fluid stacked in the stomach. Glucose regularly got to 28 mmol/l with BP hitting 225/114 in rapid spikes.
I'm now on a no food diet and just enough fluid to help the kidneys. The glucose has levelled out at 12 mmol/l and the BP is almost normal. But I'm now experiencing total metabolic collapse with steadily reducing weight. Four days ago I had a cardiorespiratory collapse and am having problems focusing the eyes with tinitus playing in sterio. Through all of this my vitals remain normal so can't get any help in ED as they won't look any further. If by some stroke of luck a doctor decides to give me a G-J opperation, that will save my life, but until then I face death before Xmas if not sooner.
The only way I have been able to survive for so long is not beng stupid with my health, heed the warnings and make changes managing your own health. You will be amazed what you can do when you have to.
Cheers