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GCA on prednisone & Actemra. DVT blood clot.
Autoimmune Diseases | Last Active: Sep 22 11:52am | Replies (4)Comment receiving replies
Hi momac59:
Fear not. I think Eliquis is a good med to be on with the problems you have. I’ve been on it for several years, following 2 strokes, 2 heart attacks and a DVT. I truly consider Eliquis to be a lifesaver!
I was diagnosed with GCA in 2019, after blindness happened in my right eye. I was on a high dose of Prednisone for the first year, followed by weekly Actemra injections for about four years.
I very much empathize with the load of medication you’re currently on, but I hope that might improve with time. I had diabetes during my GCA period too, but with watching my diet, plus exercise (just a daily half-hour walk), I beat that.
I’m now hale and hearty at the age of 91, with no sign of either GCA or diabetes, and though I’m currently dealing with “invasive squamous cell carcinoma” - skin cancer, left hand, I fully intend to beat that too. My mantra has always been that I wanna live to be 97, and then re-negotiate!
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@artist01
Thank you so much for your encouraging words . Reading them made me feel so much better; more hopeful. Lupus & diabetes have been no picnic for the past 30 years but this GCA for me has been so much harder & scarier. I will keep taking my meds & trust my good doctors at Mayo & think of you when I get anxious!
I noticed on your profile that you are an artist, & love to do animals. Me too! Losing some eyesight had to be devastating. That was one of the most difficult things for me. I lost a bit in my left eye but some days it’s not so bad & I can do my art. Thank goodness because that is my calming, meditative therapy when things get overwhelming. I’ve always loved animals & have been drawing them since childhood. I’m not a professional like you but have done some commissions & am teaching a class this January at our retirement community.
So despite these darned autoimmune diseases, I am going to keep trying to find the joy in my life & to share it when possible.
Thanks for your positivity!