@njcafe24 Carla, I sent my son an email not too long ago as it was obvious to me, he didn't really understand what MCI was. He was just concerned that I didn't want to travel in a plane, when my husband first started the lequembe infusions. I explained to my Bryan, why I didn't want to travel right now (potential brain swelling from the early on infusions), what MCI was, in the easiest terms I could: memory less, his having challenges sequencing thoughts, continually losing things, and the need for a bit more structure so he stays calm throughout the day. For him, I notice more anxiety, when we are driving on a major highway, and/or doing any travel away from home. I explained to my son, that his diagnosis of MCI, was a like a congested highway, where the traffic is blocked and can't get through. The lequembe infusions, my husband is on, is to free up that congestion, so it doesn't progress quickly. Simple analogies that help your adult children better understand what you and I (and our spouses) are still trying to understand with this diagnosis! I told my son we really don't know what the outcome is, but we're taking it one day at a time. I think with the kids, so they don't dread it, just try to normalize it and explain it in easy general terms they can understand. You have a slight but noticeable decline in memory and thinking skills that are worse than typical normal aging. You're still living independently, so is my husband, although we do pay the bills together, and he did get tripped up last year, clicking stuff on the PC and we were hacked into. Just layout a few thoughts in your mind, of what you want to say. Pull up a few links on MCI and offer them to your kids after you talk with them. This way, they become more educated and don't become fearful. We didn't tell the kids right away, maybe 5-6 months into it. And we haven't said much to neighbors as we didn't feel there was any need to, at this time. The challenge with this disease, is often friends that you tell are afraid of it, and they no longer come around. Probably in fear of their own mortality. Hope this helps. The fact that you have so much compassion for what to do for your husband with your diagnosis tells me, you'll do just fine telling your kids, when the time is right. My Best, Karla
@kjc48
Your advice about telling our children is very helpful and makes sense. It will give us time to celebrate one more family Christmas as they knew them.