Not new to hearing loss as have had single sided deafness for most of my life.
I just had a surgery the other week for a BAHA Ponto system.
I am interested in hearing others experiences regarding bone anchored hearing aides.
Also want to hear from others who have severe hearing loss.
I have experienced people who do not take hearing loss seriously and past jobs that have not been supportive and refused to make reasonable accommodations even with MD notes to allow these minimal accommodations.
Hearing loss is an ‘unseen disability’ unlike obvious signs of physical disabilities.
I could get on my ‘soapbox’ or ‘speaker’s corner’ to advocate fairness for people with hearing disorders and disabilities of various types of hearing loss or deafness.
It is time for all of us to be heard and unite.
@marem60 I fully understand your thoughts and comments. Hearing loss is invisible. It also creates difficulties with communication. Communication is key to relationships.
I learned more from involvement in the Hearing Loss Assn. of America (HLAA) than anywhere else. That learning came from meeting other people who fully understood what it was like to deal with this invisible disability; on the job, in relationships, and in life in general. It helps greatly to have your feelings of fear, frustration and fatigue validated.
You might want to see if there is a chapter of HLAA in your area. They start because people with hearing loss come together to talk and learn. http://www.hearingloss.org/chapters I have met so many people through HLAA involvement. Many have been research subjects in medicine and technology development. I hope you will share your experience with the bone anchored hearing aid. I know they have been extremely helpful to many. Also that some have not had such positive results.
The same goes for cochlear implants. The large majority of recipients have had positive life changing results. Cochlear implants are now being done for many people with single sided deafness. Should your BAHA not so as well as you hope it will, a CI may be another option down the road.
The best news is that research on hearing loss is being done now, when only a few decades ago very little was being done. HLAA was founded in 1979 and has pushed for research and development. Hearing aids have come a long way since advocacy started. Implantable devices were unheard of then. Many of the test subjects in early trials were encouraged to participate by HLAA.
As someone with bilateral progressive sensorineural hearing loss, I feel fortunate to benefit from things I was told would never happen in my lifetime. I use both a hearing aid and a cochlear implant. It has been a remarkable positive change from earlier days.
Good luck with the BAHA.
Julieo4, Hearing Loss Mentor