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25+ year battle with Hashimotos, high TSH, miserable
Diabetes & Endocrine System | Last Active: Oct 18 4:05pm | Replies (17)Comment receiving replies
@oscarde1
Hi:
I was diagnosed with Secondary Hyperparathyroidism by the Norman Parathyroid Clinic in Tampa, Florida and my cause was due from malabsorption. Most patients with Secondary Hyperparathyroidism is caused by a Kidney problem or will affect the kidneys. It took me 5 Endocrinologists and 3 years to get this diagnosis. Secondary Hyperparathyroidism is when you have low calcium, low vitamin d and a high PTH, which I have. I am now on a prescription Vitamin D2 because the Vitamin D3 doesn’t work for me. Unfortunately this disease caused severe osteoporosis. I would definitely get another opinion because like you said your thyroid and parathyroid are two separate things. If you have Primary Hyperparathyroidism then the bad/tumor must be removed by a very knowledgeable Surgeon and the Norman Parathyroid Center is the best place to get the correct diagnosis and removal of the tumor/s.
Replies to "@oscarde1 Hi: I was diagnosed with Secondary Hyperparathyroidism by the Norman Parathyroid Clinic in Tampa, Florida..."
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@redhead63 Hi Redhead: I don't have any problems from the hyperparathyroidism anymore. I am on a prescription vitamin D called Calcitriol and I was fortunate that I had normal calcium levels with no osteoporosis. My posts were in response to the original poster, (first one), JSB, who is having the problems.
Your recommendations, like mine, are for him to keep on looking for the endocrinologist who can help him and, unfortunately, for many of us it means going to multiple doctors until we find someone who gives us an answer. I was also fortunate that I have a nephrologist who spotted it from the start and put me on appropriate treatment. Perhaps, that is why I had a better outcome than you did. I have heard good things about the Norman Parathyroid Center so perhaps he can look to them, even though he no longer has his parathyroids, they may be able to help. The nephrologist found it through a simple blood test, but because I have some other even greater problems he was hesitant to put me on the Calcitriol until I insisted we try. I am glad I did. Best of health to you.