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Exacerbations * Levaquin * Selective Immune Deficiency! Insights??
MAC & Bronchiectasis | Last Active: Sep 29 10:13pm | Replies (28)Comment receiving replies
Thank you, Scoop. Very helpful. Yes, both times I've had it the Levaquin helped quickly and dramatically.
And yes, I had the vaccine challenge. My antibodies were low to start with overall and barely budged in response to the pneumovax. That's what prompted my BE/MAC team to send me off to the immunologist. My IGG has been low-normal or slightly low when it's been tested over the years. So here I am.
Thanks for sharing your experience with the self administered immunoglobulin. That's super reassuring to me. The immunologist told me the options and right now I'm waiting to hear from the company she works with about what my insurance will cover and so on. I was leaning to having in-home infusions once a month if that's available to me, I suppose because it all sounds so overwhelming! So it's very helpful to know you didn't find self-administering nervous-making. Thanks again.
Replies to "Thank you, Scoop. Very helpful. Yes, both times I've had it the Levaquin helped quickly and..."
@lvnl I am in the midst of a workup for a primary immune deficiency now. Not sure where it’s all going to end up but infusions are on the table. Honestly before my NTM diagnosis all of this would have completely freaked me out. But I have seen so many handle so much, it gives me faith and confidence that I can too. Home sub q’s are not scary. You just have to learn what to do. I have given sub q’s to several of my cats over the years, it looks more intimidating than it is. I have heard sub q infusions are better tolerated. I will post more when I know more. Good luck!
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I assumed my sputum tests would include something like Pseudomonas but it turned out they did not and a special test had to be done for it. Once done (at my request) it turned up very positive for Pseudomonas. Levaquin helping you so much could be an indication of Pseudomonas so make sure you have actually specifically been tested for it.