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41 with MAC and Haemophilus Influenzae
MAC & Bronchiectasis | Last Active: Sep 29 5:47pm | Replies (15)Comment receiving replies
If you go to Mayo you'll be assigned a doctor who knows about Bronchiectasis and MAC and haemophilus. I have all three, but am much older than you. A huge flare this spring allowed both the MAC and HI to run rampant; I got persistant pneumonia: the result being I'm on the big 3 plus brinsupri. The meds are doable, you just have to plan when to take them (with food, what time of day, etc). If you have a young daughter, you may be a person that wants to take the meds in the evening after she has gone to bed. If you're quite symptomatic, they may want you to start the meds, which you may be eager to do, in that you'd be on the path to feeling better.
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@ursala7 Hello Liz... Noticed you indicated persistant pneumonia. Did it all require hospitalization and if so what did you have to have done while in the hospital.
The one time I had pneumonia in the mid 80's (Legionella and Mycoplasma at the same time) I was on an liquid IV 24/7 antibiotic. I did not have to have a ventilator, nor if I remember correctly, I did not need oxygen either. I went to the doctor immediately when I knew something was wrong. I just didn't feel well and that was unusual for me. He had me come in the next day after I called him and he ordered the XRay and then marched me next door to the hospital.
The one thing I keep wondering about is how and what others expereinced if they came down with pneumonia. I would imagine probably differerent scenarios with each person depending upon timing and how bad the pneumonia was by the time they went to the doctor.
So, I would like to have an idea from others, before I possibly ever contract pneumonia, now that I have Bronchiectasis and MAI infection, what are some of the things others went through, the timing, seiousness of it and what was done for them during the episode.
Barbara