@goutzi My quality of life is pretty good, all considered. The main issue was that the metastasised tumour compressed my spinal cord in 2021 and left me paraplegic for a long while — recovering from that was (and still is) more of a challenge than dealing with the relatively-minor side-effects from long-term Orgovyx and Erleada use. I'm just grateful that I can walk and do most normal activities again, including picking up my baby grandson.

@goutzi
I’ve had prostate cancer for more than 16 years and I lead a pretty normal life. You would never know I have it unless I told you. I go to the track twice a day every day and walk a mile as fast as I can go. I go to the gym three times a week and exercise with weights. And 78 years old and people think I’m much younger because I’m so active.

Here’s a short history so you can see that I’ve had a lot of treatments, but you would never know it from the way I live.

2010 I was 62 and a biopsy showed Gleason 3+4. My father died of prostate cancer and he had radiation so I decided to have surgery. After surgery they told me it was a Gleason 4+3. It was only stage two. 3.5 Years later it came back, I had a Lupron shot 2 months before 8+ weeks of radiation. 2 1/2 years later it came back and I went on Lupron. I became castrate resistant 2.5 years later and added biclautamide. 1.25 years later went on Zytiga, which kept my PSA down for 2 1/2 years. After some AFIB Issues I switched over to Nubeqa. The last 34 months I’ve been undetectable. I became stage four about six years ago, had a metastasis on the L4 in my spine zapped with SBRT radiation 3 years ago. I did not find out I was BRCA2 Until four years ago. That’s why it keeps coming back, I’ve had four reoccurrences. I’m 78 now, 79 in a couple of months.