Connect← Return to Relapse after GFAP
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Autoimmune Diseases | Last Active: Sep 19 7:25am | Replies (17)
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@kevinv777
How have you been feeling lately, and how is the steroid taper going? I really hope things have been stable for you.
If you don’t mind me asking, did you have a brain MRI or perhaps a whole-body MRI at any point in 2025? I’d be very interested to know how things have progressed since then.
Replies to "@kevinv777 How have you been feeling lately, and how is the steroid taper going? I really..."
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@swalex Hi, I picked up on 29 May 2026, 5 days afterwards I was hospitalised, went for MRI and no damage detected, lumber pucture picked up I had GFAP, started treatmeant on 12th of June 2026. Finished taper down course and end of July Docter told me to get back into routine, felt beter and did light excersize. End of Septeber I had a fe bad days in September it was getting worse again going back to emergency today After talking to Dr yesterday. Apart from gfap I feel perfect, I had almost no flue before first time diagnosed with gfap, I was training for marathon and was fit. When speak to dr in hospital he said he left no stone unturned, so they also tested me for everything before realising that I had GFAP, I do not think that he did MRI if complete body