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Profile picture for Janell, Volunteer Mentor @jlharsh

@deniseheart, Denise, when you started this discussion in 2024, you were trying to find heart failure medications you could tolerate after experiencing allergic reactions to so many.

@my2girls, Nancy, has now joined the discussion after experiencing skin reactions with several heart medications herself. Denise, looking back over what you’ve learned since starting this discussion, is there anything about working with your doctors to manage the medication reactions that might be helpful to share with Nancy?

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Replies to "@deniseheart, Denise, when you started this discussion in 2024, you were trying to find heart failure..."

@thank you jlharsh

@jlharsh
Not sure if this helps with posters but I was put on a medication by my heart failure (HF) doctor. I will attempt to spell it, Spiroractone. I experienced every single side affect listed. I contact my HF doctor and he said you are allergic to it.

He then put me on an alternative called Eplerenone which was a similar drug. I did not have the side affects and have been taking over a year now.

Everyone reacts differently to drugs just need to keep trying to fine ones you can tolerate. The HF doctor I.D. the "Spiro" drug as an allergic medication on my health record.

Not sure this will help the poster but wanted to share had a allergic reaction to one medication and providers put me on something different to see if could tolerate.

@jharsh you mentioned working with your doctors so wanted to pass on that is what I did.

@jlharsh the medications are necessary and as a result, I had to concentrate on managing the histamine reactions that I was experiencing. Fexofenadine (Allegra) and low doses of prednisone (5mg, 10mg alternation days) has worked for me. When experiencing small break through skin reactions I apply ice and they do subside after 30 minutes or so. The medications that triggered anaphylaxis are avoided always.