Connect← Return to Relapse after GFAP
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Autoimmune Diseases | Last Active: Sep 19 7:25am | Replies (17)
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Has anyone gotten better since, I was i. Hospital in June with GFAP Autoimune disease,
I am past my tapering phase and it is starting again In september to become worse. Might need to go back to emergency
Replies to "Has anyone gotten better since, I was i. Hospital in June with GFAP Autoimune disease, I..."
@kevinv777
My husband got better after an immunoglobulin therapy and steroids, but especially after Rithuximab (without steroids two cycles in a year). Now, 21 months since hospital with GFAP, he feels almost as before GFAP, he walks every day 5 km + 2 km easy run, no balance problems. (In the meantime, in April, he had a minor heart attack and stent procedure due to high cholesterol, but this is another story...).
Have patience, you'll see things will turn out fine!
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@kevinv777
How have you been feeling lately, and how is the steroid taper going? I really hope things have been stable for you.
If you don’t mind me asking, did you have a brain MRI or perhaps a whole-body MRI at any point in 2025? I’d be very interested to know how things have progressed since then.