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Severe Sensorimotor Polyneuropathy, Muscle Wasting, Numbness
Neuropathy | Last Active: Sep 17 4:05pm | Replies (21)Comment receiving replies
“ The neurologist said if I would have stayed on it I wouldn’t be in this shape. Gee Thanks!”
Hope you are having mostly helpful experiences with your healthcare team other than rhe odd unhelpful quip.
I have a mistrust of doctors and it has grown since neuropathy from my experiences with them. One doctor told me to “be a man and man up” when I sought help for insomnia in the past. Recently, I heard from a neurologist “Dont worry about it, its just neuropathy”.
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@megidigo I definitely understand the mistrust of doctors. Had my gallbladder taken out knocked the phernic nerve and collapsed my lung done laparoscopic.
Second screw up a doctor gave me a shot of cortisone and it abscesses moved over into my spinal column. I ended up unconscious with mesa bacterial spinal meningitis.
Third time- wrong size hip replacement and the doctor did not clean out the osteoporosis and avascular necrosis. Which caused three hip replacements in one year.
— Then the neuropathy which the neurologist kept misdiagnosing as restless foot syndrome which I did not have.
- neurologist tried to diagnose me with Parkinson’s. I live in Texas and had to go see a research neurologist in Boston that told me my tremors are from motor neuropathy ( definition movement disorder needs clarification) that my neurologist should know the difference. So yes I definitely understand not trusting doctors.