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Severe Sensorimotor Polyneuropathy, Muscle Wasting, Numbness
Neuropathy | Last Active: Sep 17 4:05pm | Replies (21)Comment receiving replies
@megidigo IVIG panzyga helps if it is autoimmune related. That’s why it helps with CIDP and motor neuropathy. Mine is! It has given me back my balance and it has given me the capability to write my name. I don’t know about others but I had neuropathy prior to my fracture of the actebulum and four left hip replacements. I have Avascular necrosis and osteoporosis from the lupus. It had moved into my left knee. I was on IVIG as a child from age 7-18. The neurologist said if I would have stayed on it I wouldn’t be in this shape. Gee Thanks!
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@artemis1886
“ The neurologist said if I would have stayed on it I wouldn’t be in this shape. Gee Thanks!”
Hope you are having mostly helpful experiences with your healthcare team other than rhe odd unhelpful quip.
I have a mistrust of doctors and it has grown since neuropathy from my experiences with them. One doctor told me to “be a man and man up” when I sought help for insomnia in the past. Recently, I heard from a neurologist “Dont worry about it, its just neuropathy”.