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DiscussionWait 4 flare to happen B4 starting Kevzara or ?
Polymyalgia Rheumatica (PMR) | Last Active: 33 minutes ago | Replies (26)Comment receiving replies
Replies to "@boomermeg . Sounds like you got the logistics taken care of. Let's hope the body cooperates..."
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@petermccarville
We are all sincere and it really helps, and yes, a bizarre sort of "club" to belong to!!
My husband tries to understand, he knows just how bad my pain and symptoms were, but it's only the people who been through "the crucible" of PMR who can totally get just how bad it really is. Thanks for the encouragement and yes, that's what I hear, slow slow taper. Right now from 25mg, 22.5, 20mg, 17.5mg, (etc) every 14 days is the schedule but I'll let my Rheumatologist know if it seems too fast that I'm getting close to a flare. So far so good. I hear the lower you get mg wise, the slower and smaller mg taper you probably need.
It is weird and "unfortunate" 🙁 to feel all my old chronic pain coming back. It was so amazing not to feel it every single day. But it's very familiar and I have medicine for that so it's very livable. Just "unwelcome" after the break from it.
Thanks again. Blessings.