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@boomermeg . Sounds like you got the logistics taken care of. Let's hope the body cooperates and does not flare. When I was tapering, people on this site told me that a flare was something that lasts and gets worse over a weeks time. If it stays the same or starts to wane, then it is not a flare. I did have some trepidation and worry as I tapered. That old "what if..." and "is that PMR". I too have non-PMR pains but they were more noticeable when I was down in the 2-3-4 mg ranges. In fact, I know these pains well and that helped me realize that it was more of an adrenal issue/old past pain issue and not PMR.

I followed an international protocol with the treatment and taper. It was a 15 to start. On it for 1 month, then 12.5 for a month, then 10 for a month. When I went from each of these I worried but the 10 was working and in fact, I felt like PMR was leaving me around 8-9-10 mg. I told my wife that I think I "had it on the run". Just a feeling like I was kicking its ass. After a month of nine, I started to do three weeks between tapers. When I got down to 4-5 mg, I did every two weeks by a 1/2 mg. It slowed it down but made for a smaller percentage of drop each time. It is all up to you. As with many on this site, I recommend slow slow on the taper. Be solid with the efficacy of each step before you drop to the next level.

Good luck to you. We on this site are very sincere with our care for each other. It is such a bizarre club to be a part of. 🙂

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Replies to "@boomermeg . Sounds like you got the logistics taken care of. Let's hope the body cooperates..."

@petermccarville
We are all sincere and it really helps, and yes, a bizarre sort of "club" to belong to!!
My husband tries to understand, he knows just how bad my pain and symptoms were, but it's only the people who been through "the crucible" of PMR who can totally get just how bad it really is. Thanks for the encouragement and yes, that's what I hear, slow slow taper. Right now from 25mg, 22.5, 20mg, 17.5mg, (etc) every 14 days is the schedule but I'll let my Rheumatologist know if it seems too fast that I'm getting close to a flare. So far so good. I hear the lower you get mg wise, the slower and smaller mg taper you probably need.
It is weird and "unfortunate" 🙁 to feel all my old chronic pain coming back. It was so amazing not to feel it every single day. But it's very familiar and I have medicine for that so it's very livable. Just "unwelcome" after the break from it.
Thanks again. Blessings.