@britton62 I have tapered off prednisone 3 times since October of 2025... First time lasted 3 weeks second time lasted 3 weeks and now 92 days... The lowest dose I ever was told to take when tapering off was 5 mg.... The last time I tapered off I went to 2.5 mg for about 10 days and that was my own decision to go to 2.5 mg... However I did mention to my Rheumatologist and he was okay with it. Besides the every other day sitting in the Infrared Sauna for 20 minutes at 120 degrees. I also use a gel called Stopain and use it after showering every morning and sometimes an hour before going to bed. Wash my hands after every use as it can burn eyes etc... Again I think this immune condition(PMR) is something everyone has to figure out for themselves... I am praying this will completely go away at some point, In the mean time Onward!! Bill

@britton62 I started prednisone at 15 mg last November. My primary doctor wanted me off pretty quickly because I also have diabetes. So we tried for 4 weeks and stopped. Not good. Resumed at 20 and saw rheumatologist. I started tapering as soon as the pain was all but gone. By 1 mg every 2 weeks. Came off 3 weeks ago today. Every decrease caused a slight flare for a week then eased before the next taper. Similar this final dose. First week of, second week slight flare, 3rd week questioning my decision to get off. Stiffness, spasms, pain seem to be creeping in. Causing more sleep issues, fatigue, migraines. I really want to just push through. I cannot afford to stay on prednisone. If I get return of the full sx I’ll start other Kevzara or methyltrexate. Anyone on those medications? Hope you have smooth sailing!

@britton62
I discussed 0.5mg drops with my rheumatologist and that's what I started once I reached 5mg. I just halved the time at each dose so I'm still tapering within the same time frame