← Return to Wait 4 flare to happen B4 starting Kevzara or ?

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@kjoed53
Thank you for sharing your experience with me again. It sounds very similar to mine, and I don't ever want to feel that again either. Sleep is even more precious after going through those months!!! I'm so sorry you have SMM. I'd never heard of it so I just looked it up. I hope you will be ok and that it isn't fast progressing. It says it's asymptomatic. I hope that's true and you don't feel any pain or discomfort from it.
The idea of asking my Rheumatologist to slow my taper is a great idea because then the RX deductible will cover the whole year instead of just the last 3-4 months. I didn't know it can take several months for full effects of Kevzara to kick in either, so that's something to consider too. If it takes a few months,
that could be another be why she wants me on it so soon. I'll be discussing all this again with her, but everyone's input really helps me form questions and get answers too.
Thank you so much for your help. It's appreciated. Blessings.

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Replies to "@kjoed53 Thank you for sharing your experience with me again. It sounds very similar to mine,..."

@boomermeg
Thank you! Because I was on 25mg prednisone when I had my bone marrow biopsy, I don't have a true picture of my SMM risk of progression. I'll be having another biopsy in November when I have been off prednisone for a full month. My rheumatologist caught the probability of the blood disorder in his initial blood work. He believes that part of my shoulder pain and fatigue is from SMM because the pain was not fully relieved with prednisone.