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My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Sep 26 6:11pm | Replies (946)Comment receiving replies
@tlsorbet and others
Living with cancer and being your own advocate along with doing the research to understand the disease and best course for yourself is difficult. I had a video visit with my transplant MD this week where he would not answer my questions specifically-glossed over my concerns and research and ultimately was very focused on his organization’s protocol. At the end of our visit I broke down in tears and he said I was reacting emotionally. LOL - well it’s my life I’m fighting for! Best to you all on your journey.
Replies to "@tlsorbet and others Living with cancer and being your own advocate along with doing the research..."
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@davi0937 they have to make sure your cancer is irradicated from your bone marrow before giving you a stem cell transplant. So bone marrow biopsy with no molecular mutation visible is most important. Not sure what type of mutation you have and the percentages. Not to sure what concerns you have but the National Marrow Donor Program has information regarding transplant. Don’t let the physicians not answer your question or glaze over them. Request another appointment. You got us supporting. The Leukemia and Lymphoma Society also will answer question has booklets and you can actually talk to someone.