@margaretwelsh

I have found that we need to be our advocates and that each person’s journey is different. I was terrified when I learned about the long term effects of Prednisone so I looked for other options.

I pray that you find relief with Methotrexate. I go for frequent blood test to monitor my liver, kidney, and RBC count. So far, so good.

Best wishes to you. Remain hopeful!!

@margaretwelsh @n1234
I appreciate your comments. I was on 8mg. Prednisolone since January’26, when I had a bilateral insufficiency fracture of sacrum the end of April, caused by that and my osteopenia; ct scans and a recent X-ray shows I now have what radiologist calls chronic fracture of pubis rami and tendinosis in my hips, from what I read can be caused by injury. The rheumatologist did encourage me to start on osteoporosis drugs when he gave me the steroids, but I was afraid of the side effects. If only I had fully realized the dangers of steroids I would have put more thought into taking them.
I saw my cardiologist for a follow up appointment after few days ago, after discussing with him what I’ve gone through. He said I didn’t have much choice really- not treating my PMR could have led to blindness. It’s a catch 22, I think?
I’m back to 6 mgs prednisolone, drop to 4mgs was too much. Taking 17.5 mgs methotrexate, and Kevzara every 2 weeks, which makes me feel sick for a few days after.
I don’t feel any better yet.
I’ve had a couple days of feeling better then it comes back.
I see my doctor in 2 weeks, get my bloodwork next week. So far the bloodwork has been okay, some lower readings but he says it’s all fine so far.