← Return to Newly diagnosed and confused about the goal

Discussion
Comment receiving replies
Profile picture for nursek75 @nursek75

I was diagnosed with PMR Apr 2/26. I had been in pain since Dec 26/25 every day. My Dr started me on Prednisone 25mg and I had to decrease the dose every 2 weeks by 5 mg. It took 2 days and my pain was gone!! I still continued to decrease the dose by 5 mg until I got to 10 mg. I then had to decrease my dose by 1 mg every 2 weeks until done. I did fantastic until I hit 4 mg and by 6 days my pain was back! I was told to bump up my dose to 5mg for 2 weeks but this still didn't help so then I went up to 6mg and did not see much improvement. So I had an appointment with my Rheumatoidologist who said I may not be able to decrease my dose every 2 weeks but only every month. So he bumped me back up to 7mg and I will take this dose for a month before trying to decrease again. He also said this is not unusual for patients with PMR and some people are on it for 2 years. Also, this is Chronic and will never go away for good but sometimes it does go into remission sometimes for years.

So don't be discouraged just go with it and one day the symtoms with subside and you may be okay for a short period or a long one.

Jump to this post


Replies to "I was diagnosed with PMR Apr 2/26. I had been in pain since Dec 26/25 every..."

@nursek75
I couldn't use 5mg drops so I did 2.5mg drops and just halved the time so that I was tapering down over the same time period. I followed that process all the way through to the 1.5mg I'm currently on. My rheumatologist is very open to my thoughts and concerns. I'm also on a faster taper because of a subsequent SMM diagnosis, so maybe tapering this way works better for me than someone else.