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Colleen Young, Connect Director avatar

Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 5 hours ago | Replies (7021)

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Profile picture for Ray Kemble @ray666

@richardrodgers Hello, Richard. Your symptoms sound very much like mine. I'm 81. I have idiopathic large-fiber polyneuropathy, so no pain, only balance issues. I do PT, Wednesdays with an in-home therapist, and on my own other days. I also do balance exercise, too, also on my own. Like you, I'm still managing with a cane, and still driving. As I tell my friends, oddly enough I'm totally at ease when I'm driving; it's when I reach my destination, climb out out of the driver's seat and have to walk about––that's my Uh-oh! time. Although I haven't experienced a dramatic worsening of my balance, I have noticed recently (the last few months) what I'm calling "spells," hour-long episodes of poorer than usual balance. These "spells" have me wondering if my balance is, in fact, getting worse. // My very best wishes to you, Richard! –Ray

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Replies to "@richardrodgers Hello, Richard. Your symptoms sound very much like mine. I'm 81. I have idiopathic large-fiber..."

@ray666 Hi, Ray. Poor balance seems to be a common problem among those of us with PN. I just started PT. Mostly breathing and a few balance exercises. I am wondering, what specific exercises are you doing to help balance? Thanks.