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Idiopathic intracranial hypertension

Brain & Nervous System | Last Active: Nov 25, 2021 | Replies (29)

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@helpformyhusband

My husband has been diagnosed with Idiopathic Intracranial Hypertension and has been suffering with debilitating symptoms for over a year and hasn’t been able to work. He needs to see a Nero-ophthalmologist about brain surgery to help relieve the pressure on his brain.

Yeah, like it’s not bad enough he has to have brain surgery and stay in the hospital for at least a week during a pandemic. Taking weeks we find out that the doctor he need to see about the surgery won’t see him because he doesn’t take our insurance. We had a zoom meeting with the neurologist and she gave two us slight possibilities, though she wasn’t very hopeful.

My husbands neurologist has already reached out to the specialist doctor and Mayo Clinic and have been denied due to insurance. Now his doctor is trying to bypass the Nero-ophthalmologist and go strait to a neurosurgeon and she is also reaching out to a doctor in Tucson she thinks might be able to help.

In the last few days of July 2019 I graduated with my bachelors in biology and secondary education. During the same time I got my first teaching position. It was a wonderful and intense first year.

This year I have the best team and I love teaching and my students. But with my student loans and beginning teacher pay things are extremely tight. I lead three clubs and help students with homework. I love this program so much that I taught two sessions of virtual summer school sessions.

Now my husbands vision, health, and well-being are on the line, and our families ability to survive. He is not himself, he is in a fog, he can’t think, and stress causes his brain to short circuit. It hurts to see your best friend and love go through something so horrific; and to suffer for so long, and not receive the medical help he needs. It is his brain! Do you know any organizations or doctors that would be helpful?

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Replies to "My husband has been diagnosed with Idiopathic Intracranial Hypertension and has been suffering with debilitating symptoms..."

Hello @helpformyhusband,

Thinking about you and your husband. I hope he is stable for now.

Any new possibilities for a referral? Any help from your insurance carrier?